Category: Story
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Pain is Information: My Awakening
A few years ago, when I was 40 years old, I broke a tooth below the gumline and needed to have it extracted. My options were to wait a month and have the procedure done at my regular clinic, or go to an emergency clinic and have it done the same day. I chose the…
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Running for Cole
I have always had a passion for running. I don’t run fast, and I’m not breaking any records, but that doesn’t matter because running means so much more to me. Running is my release, a way for me to process my emotions and whatever is happening in my life at any given moment. I didn’t…
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A Mother’s Appeal to Bloomingdale Public Schools Regarding the Use of Restraint and Seclusion
Nearly a year ago, I addressed this Board with significant concerns about the use of seclusion in our District. At that time, I specifically spoke about the practice of surrounding children with mats, enclosing them against a wall for unrestricted periods of time. During that time, I addressed Bloomingdale’s higher reporting of restraint and seclusion…
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What PBIS Got Wrong About My Echolalia
Internalized echolalia is one of those things people rarely talk about because they rarely know it exists. For me, it’s not some quirky feature of being autistic. It’s my brain’s operating system. It’s the language I speak in silence. While the world pushes me to say things out loud and to follow the scripts they…
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Bullied by Peers and Bullied by PBIS
As an autistic person, school was never a place I felt truly safe, included, or supported. Recently I came across a social media post based on the Autistic Not Weird 2022 Autism Survey. Seeing statistics like these—where almost 70% of autistic students reported having a negative school experience—unfortunately doesn’t surprise me at all. I was…
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Honoring Joshie: A Call for Change in Special Education
Today, I stand before you to share the story of a remarkable child, a boy whose light shone brightly in a world that too often failed to see how innocent and loving he was. His name was Joshua Andrew Sikes—Joshie—a boy who loved Halloween, pumpkins, and the simple joy of human connection. He was a…
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A Space So Full of Light
Several years ago, I heard Brené Brown share a story about her son, who was struggling with friendship lessons. She encouraged him to surround himself with people who would celebrate him when he was shining brightly—not those who would blow out his candle to make theirs appear brighter. While I wouldn’t call myself a Brené…
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Misunderstood: How Communication Differences Lead to Social Seclusion in Higher Education
At one point during my college experience, I was called into a meeting with several of my professors. They informed me that some of my classmates had told them they were scared of me. I was stunned. I couldn’t understand how I had come across as frightening.
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Change is Needed in Higher Education to Support Neurodivergent Students
My college experience was shaped by the challenges of navigating an environment that often did not fully understand or accommodate my needs as an autistic student. As someone who had been non-verbal until age 5, I still faced difficulties in social interactions, communication, and adapting to the expectations placed on students. Although I had made…
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“I’m Stupid; My Brain is Wrong”: How Broken Systems Harm Children and Families
“I’m stupid; my brain is wrong, and the only way to fix it is to die.” How many parents have heard these words from a neurodivergent child? How does one respond? “I wish I could die and come back with a new brain.” How many parents have ever felt this way about themselves because of…